Iread some blogs on here and I hve suffereed for years with about all of the aliments said No one believes me I have suffered so much and doctors say its all in emotional and I was refused disability too Frobro is devistating not only

I read some blogs on here and I have suffereed for years with about all of the aliments said No one believes me I have suffered so much and doctors say its all in emotional and I was refused disability too Fribro is devistating not only to me but my family Not being able to work not being able to ineract with my children the way other aere able too and friends too. there is hardly a day I goo without pain... headaches migraine aching pain throughout sore bones ,clarity. forgetfulness.
When I did work I suffere auro I believe seizures I would come home and rest to eat I would just go into spazms. Tingling ,numb hands , feet., it felt at time I needed to be pull with a rope to move My hips where about to calaspe as my knees freqeuntly would give in/ or bend oe sittin I couldnt move my legs, I just calaspe for no reason.It hurts to touch . Not to mention Irrability with touch sight and sound.With pain up my spine. My head radiates with constaint pain going throughout my body. from mild to servere.where breathing becomes painful from the pain. Every day hoping my muscles would not ach so much.. that I will be able to at least a task s or so .with frequent stops to rest in between.One good day is catch up day and the pay for that following usually its bedriddin. Living is striving hoping for a good Day!

Dear striving to live,
I know that you wrote this over a year ago, but I am new here and wondered if you found any answers to your questions or relief for your pain?
Chris in Fremont

I did suffer all of this for over 25 years before I found out that it was not caused by my TMJ, or subluxation in my spine, or lack of exercise, or sadness, or you name it.....

Yes, it was fibromyalgia that was the source of all I was going through. It was not a doctor that diagnosed it, although he did agree with the diagnosis.

I was treated for TMJ for 20 years. Then I was diagnosed with 'depression', when I thought it was just menopause I was dealing with, and I was put on Paxil and then that was replaced with Effexor. This did help some, but I still continued to get worse for several years before I stumbled upon fibro quite by accident.

It had gotten to the point again that I couldn't talk, think, work, you know the list, when I saw an ad by Laura Schlessinger advertising a bed that even people with fibromyalgia could sleep in. And since I hadn't been able to stay in bed for years because of pain, I decided to look it up online. My research said that dentists were more familiar with it at that point because it almost always involved TMJ symptoms. Symptoms were the same, except that TMJ was actually a symptom of fibormyalgia, not the other way around.

I had cleaned my dentist's office for 20 years with him treating my TMJ. He knew how bad I was and I let him use me as kind of a guniea pig with new TMJ treatments. In my desperation again at the point above, I asked my dentist if it was possible that that was what I was suffering from, and that TMJ was not the CAUSE. I guess I was somewhat floored when he told me that, yes, that's what he had already suspected!

I'm sure that he could not volunteer that information to me because he was not an MD and could probably get sued for diagnosing me. My dentist always went to conferences to remain updated on new dental techniques, and even became an orthodontist, so I knew that if there was any truth to it, he would know.

So actually we had mutually come to the same diagnosis and I was able to then work with my MD to treat it.

Effexor alone did not help with pain, joints, flutters, and many other things. Mostly just being able to sleep again at night and remove the fog I had been living in. My doctor was going to replace it with Welbutrin. Of course there was the slow removal of Effexor and then the gradual addition of Welbutrin. I did not go through what you would call withdrawal, because all of the symptoms that were returning were ones I had before I ever went on Effexor in the first place.

Well I was soley on Welbutrin now, and I happened to be cleaning the dentist office one Sunday night and I was just a complete zombie. So I called my brother-in-law pharmacist for information on the two medications. After he explained them and what they do, I said, "Well they're not the same thing then, and I wouldn't be overdosing on something if I took them both at the same time?" I had already taken an Effexor before I called because I just couldn't stand it any longer. I was already feeling better by then.

The next day I saw my MD, told him what I did and why. He checked the Rx's himself, and called the psyciatrist at the hospital to double check. He called me the next day at home and said that the psyciatrist said that I SHOULD be on both of them.

AND YOU KNOW WHAT??????? I have lived pain free for about 4 years now. I still have limits and have to pace myself and not be afraid to say no, because I look so normal that people don't know that anything is wrong with me!!!!

I CONSIDER THAT A MIRACLE!!!! I am so normal again that I have to constantly remind my husband why I can't get up for church once in a while, or why I would sleep all day after some intense activity, etc. But he doesn't mind, because he's got his wife back. Any my three adult children and grandchildren have their mom back. And I actually worked in our garden again.

I did quit cleaning houses. But my husband didn't mind that either. It took a year for my body to regain its strength.